This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, but yet finally receiving a diagnosis is devastating to many of us. This book includes some personal storieThis book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, but yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcome the obstacle of self-pity, to move forward into a new life. Faith is the backbone of this book and I hope that through faith you will also learn to cope with EDS....
|Title||:||zebras of hope a guide to living with ehlers danlos syndrome|
|Format Type||:||Kindle Edition|
|Number of Pages||:||37 Pages|
|Status||:||Available For Download|
|Last checked||:||21 Minutes ago!|
zebras of hope a guide to living with ehlers danlos syndrome Reviews
it was a really good informative book. It was so nice to read about EDS from people who have it! loved the personal experiences stories most of all. it's nice ti know I'm not the only one with this condition. definitely worth reading!
InformativeGreat read for people newly diagnosed like myself. I only wish it was longer and had more examples. Some content comes across as slightly patronizing.
This has some basic information on a rare, hard to diagnose disease. However, most of this can be found on line. The spiritual bent to this book made it feel a bit too much like self-help or memoir, rather than a resource.
This book is a short book meant for those with the rare Ehlers Danlos Syndrome (or in one case not as rare as you think). The book begins with a short review of symptoms and diagnosis of the various types, which with some effort you can find on the internet, but is neatly gathered here in one place. The main portion of the book is dedicated to a handful of personal stories of sufferers. This section reminded me that my subluxations are nothing in comparison to what it could be like. There is also a nice collection of resources listed at the end. I think that this book is great in the spirit in which it is intended to provide some resources and some reassurance to the newly diagnosed, especially those in isolated areas.
This isn't the best guide to dealing with symptoms of EDS out there, but it is nice to see how others cope and hear that we are not alone. It's got a big section of selected stories, so more EDS types were represented than just the author's. I would have given it more stars, but I felt like it talked about God/referred to "The Lord" far too much and was too directed at one religion, which made it lose a lot of credibility in my eyes. If it had been worded in a way that folks of all religions could relate, I would have loved it and agreed completely!
Love this bookIt's wonderful to hear about others stories. So uplifting. I highly recommend this book. She has such a wonderful cheery personality. She talks about realistic emotions we all face.
After getting an EDS diagnosis, this book really helped me to come to terms with my new "normal" and prepared me very well for my doctor appointment with the specialist. I'm grateful Ellen told her story.
I read a lot of these short nonfiction Kindle ebooks. The quality of this one was a lot better than most.
it was ok, i especially liked one of the personal stories about living with eds but not letting it get you down.